Friday, August 27, 2010

State Updates


NJ Alzheimer’s Disease Study Commission – Action Needed NOW!

New Jersey must take the lead in developing comprehensive plans for the present and future crisis of Alzheimer's disease. The NJ Alzheimer’s Disease Study Commission will: provide an overview and framework of the impact of Alzheimer's disease in New Jersey; analyze all areas affected by Alzheimer's issues; identify existing services and service gaps; and propose legislation to help our legislators understand how the state can provide enhanced service to Alzheimer’s disease individuals and their families.

Please contact your legislator and ask him/her to add their support to this bill. Click here to find your legislator and take action! Inform public officials that Alzheimer’s disease affects loved ones, friends and neighbors. It places an enormous burden on family caregivers who must endure prolonged physical, emotional, and financial stress. Urge them to review this bill and commit to supporting this legislation. The bill numbers for this legislation are: (S125/A322).

Memory Walk and Advocacy

Memory Walk is the Alzheimer’s Association’s signature event and an ideal time to become an advocate and join in the fight against Alzheimer’s disease. Leadership in this fight is needed now more than ever, and our elected officials, at the state and federal levels, must commit to fight Alzheimer’s disease today.

An advocate is someone who takes a political action in support of our cause. Anyone can become an advocate. You don’t have to be an expert in government affairs, just have the desire to share your story and have your voice heard by your elected officials. This year individuals who sign up as advocates will ask their member(s) of Congress to commit to the Association’s top priorities- investing $2 billion in research, providing access to care and support services, and creating a national plan to solve the Alzheimer’s crisis. The Association will engage advocates year round in a variety of activities to progress the legislative agenda of the Association. Those who sign up will receive monthly federal updates, special legislative alerts, as well as advocacy communications from their local chapters. Be a part of Memory Walk today and sign up to become in an advocate!
Memory Walk has four locations!

Southern Regional Memory Walk - Saturday, September 25, 2010
Little Silver Park, Point Pleasant Beach

Central Regional Memory Walk - Sunday, October 10, 2010
Educational Testing Services, Princeton, NJ

Northern Regional Memory Walk - Sunday, October 24, 2010
Van Saun Park, Paramus, NJ

Liberty State Park Regional Memory Walk - Saturday, October 30, 2010
Liberty State Park, Jersey City, NJ

Click here to start your own Memory Walk team and sign up to become an advocate in the process!

Reminder: November 1 is Alzheimer’s disease Awareness Day in New Jersey. For more information, please visit our website at www.alz.org/nj. You can also call 609.275.1180, or email at advocacy@alznj.org.

Federal Updates

National Alzheimer’s Project Act (NAPA) - Action Needed!!

Contact your member(s) of Congress and urge them to sign on to NAPA!

Ask your representative to cosponsor the National Alzheimer’s Project Act (S.3036 / H.R. 4689) that will establish a National Alzheimer’s Project Office and inter-agency Advisory Council responsible for creating a national plan to overcome the Alzheimer’s disease crisis. In 2050, up to 16 million Americans will have Alzheimer’s disease, creating an enormous strain on the health care system, families, and the federal budget. Yet there is no plan on how to deal with this looming crisis. If enacted, the National Alzheimer’s Project Act will:
• Launch a campaign within the federal government to overcome Alzheimer’s disease.
• Establish an inter-agency Advisory Council to create a coordinated National Alzheimer’s Disease Plan.
• Comprehensively address the federal government’s efforts on Alzheimer’s research, care, institutional services, and home- and community-based programs.
• Accelerate the development of treatments that would prevent, halt or reverse the course of Alzheimer’s disease.
• Decrease health disparities by ensuring ethnic and racial populations at higher risk for Alzheimer’s receive much-needed care and services.

Find out if your member of Congress is a co-sponsor of NAPA. If not, ask your member of Congress to act now and support NAPA (S. 3036 / H.R. 4689).

Alzheimer’s Breakthrough Ride

Sign the petition today and tell Congress to make Alzheimer’s a priority!

Starting in California and culminating in Washington, D.C., the Alzheimer's Breakthrough Ride is an active way researchers are supporting the fight against Alzheimer's disease. From July 15–Sept. 21, researchers will cycle across the country, relay-style, to collect over 50,000 signatures in support of the Alzheimer's Breakthrough Act. On Sept. 21, World Alzheimer's Day, all riders will gather in the nation's capital to deliver more than 50,000 signatures supporting the Breakthrough Act to Congress. Click here to sign the petition!

Remember to pass the petition along to your friends, family & coworkers!

Health Care Reform and Alzheimer’s Disease

For regular updates on how the new health care reform legislation affects individuals with Alzheimer’s and their family caregivers, you can now visit http://www.alz.org/living_with_alzheimers_healthcare_reform.asp.

For more information on public policy and advocacy, please visit our Web page, www.alz.org/nj. Thank you for visiting our blog; we welcome your comments here.

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